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Is Vidaza not working anymore ?
Amy did 3 cycles of vidaza and now her counts have hit rock bottom ... does this mean Vidaza stopped working ? I was also told no neulasta shot with MDS ?
so now i'm told if labs are bad tomorrow they will do another BMB and take it from there ... I know that wont do a SCT without the gallbladder out Due to it could cause problems . Ugh .... I wish they would have taken it out when she had good counts
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Mother of a daughter 27 with MDS . Cognitively delayed at birth 1987 , seizures 5 days old . pancytopenia 2006, AIHA 2013, EVANS 2013 , CVID 2013, ALPS 2014. MDS 2014
8/18/2014
WBC .3 , hemoglobin 7.3 , hematocrit 2, platelets 60 , neutrophil .21 Mag 1.6, Potassium 4.6
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