Ninanna,
It was quite brave of you to undergo the double transplant. The idea behind the trial procedure -- avoid eventual rejection by accepting a kidney AND its matching immune system -- makes sense for someone as young as you.
It was necessarily a mini-BMT, not a full one, because with full transplant preconditioning you couldn't have been eligible for surgery.
You're on the right path. If you were 100% donor at Day 30 and Day 60 then I'll bet you are 100% for good.
Skin GVHD is a lousy side effect. Let's hope it doesn't flare up again as you reduce the immunosuppressants. Good luck. I hope the trial is a smashing success for you and for future kidney patients.
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