Ok, now I have 2 possible solutions. They will see me at the Hutch in Seattle even though it's been over 4 years since I went for another opinion; do a CBC and give shots if needed. Also, another growth factor called Granix (Tbo Filgrastim) is stable for 5 days unrefrigerated, and could be obtained at the specialty pharmacy before I leave. Just thought I would share that in case anyone else has a similar issue.
__________________
Margaret, age 68, dx MDS 5 q- 5/09- now RCMD; also MGUS. TP53 and TET2 mutations
|