Quote:
Originally Posted by billyb
BamBam if your a regular person your not supposed to have any blasts in the blood....Going ron 4% to 33% is an indicator that treatment may not be effective anymore, have them do a differential every week for 6 weeks, if your on a 28 day cycle of treatment you can see whats going on, or ask for another BMB or better yet a FISH Test, that will determine the best route for tratment.....Billy
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Dear Billy, I'm saddened to hear that Tina is now receiving hospice care. I hope that the care you both receive is as caring and accessible as is mine. My Vidaza was stopped after four months after biopsy showed increased blasts. I had such awful side effects with it, so it was a relief to stop. After another ER room with that awful debilitating gut pain (since relapse last March) I was admitted where a CT scan (the latest of many that showed nothing) started to show swollen lymph nodes in my abdo, as well as thickening between the large and small colon - the leukemia had moved into that area and I suspect is now in my CNS. I was discharged one week later, after IV fluids, transfusions and antibiotics for an opportunistic UTI and declared palliative. I am now on Hydroxyurea, which lowers my counts even more dramatically and I'm close to calling it a day with the TRX. I'm not sure I can take any more. As Tina's loving Caregiver, I realize how hard this must be for you too, as I watch my own spouse struggling to cope with this, the challenge of all challenges. I send you love, peace and understanding and I send Tina love, peace and freedom from pain. Thinking of you both, bb