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Thank you bailie ,
How are you feeling now ?
It has been a road trip for sure and very interesting to say the least .
Day + 27, 28 , 29 , they were all still very good days minus the sluggish body which I think comes from MAG and Benadryl IV I'm putting my foot down no more iv Benadryl ... not good for Amy's wobbly body .
Day + 29
Mag 4 grams= 4 HOURS
IVIG= 3 HOURS
pro graft IV= 2 HOURS
Day + 30 WE STARTED A NEW MED to help with not getting any lung infection called atovaquone I was told everyone starts it one day +30
Amy needed
Mag 3 grams = THREE HOURS
1 unit of blood = TWO HOURS
and pro graft IV =TWO HOURS
which makes for a long day
Amy is still eating and drinking
stools are great ! no rash
counts are going up slow
still has hair on her head.
Day + 31 we have a DAY OFF !!!!!!!!!!
THANK YOU LORD JESUS !! AMEN
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Mother of a daughter 27 with MDS . Cognitively delayed at birth 1987 , seizures 5 days old . pancytopenia 2006, AIHA 2013, EVANS 2013 , CVID 2013, ALPS 2014. MDS 2014
8/18/2014
WBC .3 , hemoglobin 7.3 , hematocrit 2, platelets 60 , neutrophil .21 Mag 1.6, Potassium 4.6
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