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I have learned that patience is so important and at times very difficult. The mag is tough for many. I am still getting mag at home five days a week and one day at the infusion center. I amazed that Amy is eating and drinking well. That was one of the most difficult things for me through about Day +35.
I am feeling fine (Day +80) and almost as well as before MDS. Naturally, I am always aware that that can change at any time. I have had skin GVHD in different places (arms and legs) for about three weeks. It is barely noticeable and almost entirely gone now. It didn't itch, so I am glad about that. I take a fast one mile walk every day and seem to tolerate it well.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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