Ray, I am disappointed to hear about your situation. I know that you have such a great attitude to make this work. It is a project. I am at Day 93 and about two months behind you. Your comments about Day 100 certainly caught my attention and I thank you. I guess what we have all learned is that there are no clear/clean ways to approach recovery. Did you have many early indications about reaching the problems at Day 100? I have had minor indications with skin GVHD. My rash seems to clear up after about four days and then moves to a different location. It doesn't (yet) seem to be a problem in that the rash does not itch and barely noticeable.
I wish you the best and I really appreciate everything that you post.
p.s. Was that a "typo" of Day +188? I was thinking you were about Day 145?
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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