I'm sorry you're going through this too. I started to have problems when I was 20. Every journey is so different. I'm on watch & wait right now too. Apart from some nasty infections I'm quite well Inbetween. Uncertainty is killer! I do struggle with it sometimes. All any of us can do is be thankful for today. Hang in there xo
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Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections.
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