|
Ray,
Not sure if you are being released too early, I think it depends on how much care you are able to receive at home. I know that being at home feels good, even if you have to give yourself IVs and other treatments to stay well. I think that physical therapy sounds like a must in your situation though to get the muscles working. I think that will probably help with some of the gut symptoms as well, as moving always seems to help me, even if it means that I move a little bit and then end up in the bathroom a few minutes later. I just generally feel better when I am able to get around more rather than less. I have not had level 3 GVHD of the gut though, so I cannot say that I fully understand what you are experiencing.
As always I pray for your strength and victory over this illness.
Dan
__________________
MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
|