Hi - I haven't found it helpful to ponder how I might have come down with MDS. Ultimately everyone gets something.
The course of the disease seems different for everyone - if your husband is low risk and progressing slowly then watching and waiting is the best course - that can go on for years. As your husband is relatively young, a SCT may be appropriate down the road - but only if counts or marrow changes - otherwise I believe the risk of a transplant outweighs the benefits. I watched and waited for over two years - my Dr. told me of patients she has who were relatively stable for many years longer - unfortunately that wasn't me and my counts started dropping and I have just started Vidaza - and a SCT may be in store for me at some point. Hopefully you husband will stay stable for a very long time. Best wishes to you both.
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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