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Hi Sharnie, wow it's good to hear your story. Not good you still live with such uncertainty, but I appreciate u sharing with me. Each journey can be different & I'm feeling so much better right now that I'm wondering if spontaneous remission is possible! Maybe I'm still in denial, not sure. I guess I've been so unwell with infections for so long that it's so nice to be feeling more like myself. But I guess that's the best way to start chemo, being as well as possible.
Well I'm not going anywhere for a few weeks, in 6a South Oncology. Think I'm staying here for treatment. Feel free to pop in! Might send u pm.
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Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections.
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