|
Ray,
Good to get an update from you. I am a little concerned that you were told that there was no cure for the grade 4 gvhd. There are a lot of trials out there to try and address GVHD, even for steroid refractory patients. Have you been able to get a second opinion on the GVHD?
Dan
__________________
MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
|