|
Praying, if you are new to AA it's extremely beneficial to learn as much as you can about the disease. Use the aamds.org Online Learning educational webinars. Eventually you'll be able to get an idea yourself as to how much your local treating hem knows and how up to date he/she is.
I had a very kind and supportive local AA specialist in the past. But he was older and advised prednisone and didn't suggest ATG which I now which I had done way back. The prednisone ruined my bones. Whether it helped or was a coincidence, my platelets did go up from 24K to 151K.
I'm not new to AA but am also looking for a new experienced local hem who's very good at both AA and MDS since my disease has changed and the dx may have too.
__________________
AA/PNH Dx 1998, Warfarin, Soliris
|