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Old Fri Jan 2, 2015, 03:38 AM
Susan Susan is offline
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Join Date: Sep 2003
Location: Chicago, Il
Posts: 101
I can't answer except to say many have their dose lowered at least temporarily. I have PNH and experienced kidney failure a few years ago. After 8 days of IV fluids and pushing oral fluids, drinking as much water as possible was the recovery treatment as well. It really protects the kidneys. But you'll want to check with the treating hem of course. I would wonder if drinking too many fluids might have any negatives such as diluting the med too much.

Maybe someone else who has been on cyclo will answer about the platelets. At least they are still well within a safe range. I hope he's feeling better!
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AA/PNH Dx 1998, Warfarin, Soliris
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