Hi All!
Thank you for the very kind words
!
To those who asked about the possibility to receive Vidaza I will answer that Vidaza isn't approved in EU for low risk patients. My dr is a specialist in Vidaza and wrote his dissertation about Vidaza. He should prescribe Vidaza off record if he thought that Vidaza would help me - Thalidomide and Revlimid (very expensive) are not approved for my type of MDS either but I got those drugs. I have had very severe bone marrow fibrosis since dx.
I have never wanted a SCT due to the risk for complications. I am 75 yo and have lived a good life. I am very thankful for that.
Warm regards
Birgitta-A