Quote:
Originally Posted by DanL
Ray,
Good to get an update from you. I am a little concerned that you were told that there was no cure for the grade 4 gvhd. There are a lot of trials out there to try and address GVHD, even for steroid refractory patients. Have you been able to get a second opinion on the GVHD?
Dan
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I received a second and third opinion. They do not want to cure GVHD but just control it at some low level. The GVHD tends to kill off some residual cancer cells and is a good thing to have. I will inquire about clinical trials.
I am finally off IV feed. After 3 months connected to an IV pump it feels good to be off the pump. Next week they will remove the trifusion port that has been in there for 6.5 months.
Ray