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Ray,
Congratulations on getting off of the pump. That is fantastic news. I agree that the doctors do like to see some lower level of GVHD due to its anti-mds effect. We keep tapering me off of entocort and tacrolimus, but I keep flaring up just a little each time, so we end up adding a little back to find the right levels.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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