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Old Sun Jan 25, 2015, 07:35 AM
SLB SLB is offline
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Join Date: Mar 2012
Location: Brisbane, Queensland, Australia
Posts: 130
Hi Harani,

I tried responding yesterday but am having troubles with it logging me out when I try to post. So I will try a short version. I believe I was diagnosed with secondary AML because I first had MDS that transformed while taking vidaza. I required 2 rounds of induction chemo before achieving remission, my bone marrow never regenerated so I was completely transfusion dependent, so had an 8/10 transplant on the 6th of March, almost 2 years ago!! Honestly all these things gave me one of the worst prognosis and I stopped researching stuff because it was too depressing!

Like Sally said, every case is different... Around the time of my transplant I remember 2 others with all the "odds" in their favour that didn't make it. And others since then. My doctor said without transplant, I had no odds... So I just had to go for it! Now almost 2 years old, I am doing well! Counts are all normal, with a bit of "annoying" rather than serious chronic GVHD. And I have managed to stay out of hospital (except for numerous out patient hours) since 3 & 1/2 weeks after my transplant!

I am so sorry your mum has to go through this and you too! But be strong and keep positive! There are success stories out there and treatments are getting better all the time. It is a hard road (and a never-ending one, it seems) with no guarantees but I wish you & your mum the best of luck. Feel free to inbox me if you want to chat further.. Best wishes..
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Sharnie, 37yo, dx Mar 2012 RAEB II 13% blasts. 8 months of Vidaza. Transformed to AML in Nov 2012, induction chemo, no remission. 2nd lot of chemo, remission achieved. SCT with 8/10 match, Mar 2013.
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