Brigitta -
I am so happy that you have not struggled and know that neutropenic fevers are not fun. We are so fortunate to have kept my husband well with no fevers at all for 6 months.
I have enjoyed your responses so much and your helpful links. I often wondered how you found everything.
As we all know life is very precious and this disease brings us back to the priorities in my mind - time with family and friends. It sounds as if you have a wonderful family and I am sure your are enjoying them to the fullest.
I am so grateful that my husband and I took many trips before MDS/AML took over our lives and didn't wait until we were "older", as travel is what we enjoy most.
My best to you and yours....Peachy
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Husband 69 dx MDS/RARS 4/2012,Arenasp 2013; dx RAEB-1 5% Blasts - transfusions, Vidaza - BMB 12/2013 35% blasts - dx AML M6b (Pure Erythroleukemia) - Induction/Consolidate complete Aug 2014 - BMB 5%; Not accepted for BMT ; New BMB 18% Blasts with dropping whites and platelets avg HGB 9
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