|
Hello again Paul,
Yes, indeed, we're in New Brunswick Canada. I went searching online and alas, in Canada, the only Centres of Excellence for MDS are in Toronto. While that's not an issue for me, my mother would never agree to travel. She is adamant about staying close to home.
As for your question about testing for genetics, if it was done, we never got any results from her doctor. Again, he is not so forthcoming with the information...perhaps because it's so dire. All I know is that she has an "aggressive" form of MDS ( inter 2 at dx) and without Vidaza, she will die. When Vidaza is no longer effective, they will discontinue all treatments and she will be placed in palliative care.
I am praying that Vidaza will keep AML at bay for a couple of years at least. I would love to be able to celebrate her 80th birthday with her.....
A.
|