I agree with you Maggie. While ever I feel well I behave like a normal human being and don't restrict myself from doing anything. I'm going to Papua New Guinea 4-29 June to do a volunteer stint with my husband. I volunteer at a local school a couple of times a week helping kids who are struggling with reading. I find these types of activities keep my mind off the prognosis. If an individual doesn't feel well, then that's a different matter I guess.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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