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Thank you Janna
Thank you Janna for being an advocate for MDS. Hoping the future brings more success stories. Last July 4th David (Whizbang) got the devastating news that his MDS transformed into AML 8 months after SCT. He begged his doctor to let him come home for July 4th weekend to spend time with his family. We had a huge bbq and took lots of pictures as we knew his time here was limited. His 1 year is 12/17/14, but today is a tough day for us. We will have our bbq and fireworks as usual. Its what my daughters want and we know it is what David would have wanted. Happy July 4th!! Wishing health and happiness for everyone on the forum.
Donna
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Married, father of three daughters; now 46; diagnosed w/ Major form MDS 6/18/2013; had low counts across the board; Multiple chromosome abnormalities; Finished 2nd round Dacogen 9/13; SCT - Oct. 31, 2013; Sibling match 10/10  ; 5.5% blasts down to 3%, now 1% (post BMT)
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