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Pretreamtent for aggressive MDS?
I really hope I get some sort of response from this post because I am desperate. The bad news keeps coming and I received results that my dad is positive for FLT3-ITD which makes for an aggressive disease. Some websites I have visited said it wasn't a bad progrosis but others say it's a bad prognosis. Maybe the Cuadra's know about this new drug Sorafenib that can be used to suppress this mutation? I have read that taking it before and after transplant can be very beneficial. Has anyone taken this drug before? Please someone out there give me some hope! I love my dad so much and I want him to be around for a long time. 
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Daughter of father diagnosed with MDS RAEB-II intermediate risk due to normal cytogenetics. Blasts at 13% peripheral blood at diagnosis with no cytopenias. 6 cycles on Vidaza then on to SCT at Duke. BMT from my brother and now showing signs of relapse. DLI in the works.
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