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Does your doctor have any insights at this point?
I would look at what your hormones are up to. Thyroid, estrogen, testosterone, DHEA, etc. Iron overload effects the endocrine system.
Also, the burden of the phlebotomies will place an additional stress on your body's nutrient requirement to manufacture new blood. Have your vitamin D, B12 and folate checked to see how they are. Don't supplement 3 -4 days prior to any testing.
You B12 should be at a minimum at 500.
Think about skipping a phlebotomy for a month and see if that helps.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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