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Old Tue Aug 18, 2015, 05:17 AM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
Glad to hear you're still soldiering on, Chirley. You are a courageous lady and I take my hat off to you. 41 kg is tiny - hope you can improve on that!

We've just come back after a few weeks in Victoria due to my father-in-law's final illness and death at 98 years old.

Re public hospitals, to have my infusions I've been in quite a few excellent ones in different parts of Australia. In spite of the media reports, there are some good things happening in the public system.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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