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Old Tue Aug 18, 2015, 11:07 AM
traceyn11 traceyn11 is offline
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Join Date: Apr 2015
Location: Irvine, CA
Posts: 142
Hi Paul S - I was thinking about you when I wrote my post

I was wondering how you were doing since we both seem to be on the same track. Glad to hear they were able to find a 10/10 MUD for you since your brother couldn't donate. Sorry to hear about the heart problems, but it's good they know about it going in. I will be saying some prayers for you. I know you will do great - you have such a positive attitude!

Not sure about the t cell depletion or campath, I am going to write those down so I can ask about it. I see the hematologist this morning, maybe he will know. Yeah, the main reason I was concerned about the donor's age was the potential health problems, but she could be one of those incredibly healthy people who jog 5 miles a day! We haven't discussed haplo or chord blood, but when I called the MUD search contact last week, she said they had 2 donors they were requesting more info on. So if this one doesn't work out, hopefully they have another. I am going to call today to find out. My main concern right now is the Aspergillus Pneumonia that I may still have. The stem cell dr. is aware of it and said they would monitor it, but it can be fatal.

I would love to have a cup of coffee with you when you make it out to Calif. next year to celebrate our recoveries!

All the best to you too!
Tracey
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Tracey, mom & wife,age 58, dx MDS RAEB-2 4/15, normal cytogenetics, Update: SCT cancelled. Blasts at 67%. New dx AML.
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