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Hi Paul,
The pneumonia is called Aspergillus, apparently you get from inhaling mold spores. Most people don't have problems when they inhale them, but of course, we are not most people. They have been treating it for almost a month now, so I am hoping it is gone, but it can come back too. It can be fatal, which is what I am worried about. My hematologist didn't have much to say about it, other than saying I should go through with the stem cell transplant and that I will be in good hands.
My transplant is tentatively scheduled for 9/23 pending donor confirmation. I start Fludarabine on 9/14 as an outpatient for 5 days.
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Tracey, mom & wife,age 58, dx MDS RAEB-2 4/15, normal cytogenetics, Update: SCT cancelled. Blasts at 67%. New dx AML.
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