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Hi Data - sorry to read that your Hb and WCC counts are decreasing. I can imagine your concern.
How long have you been on W&W now? It's a bit like having the 'sword of Damocles' hanging over one's head isn't it.
I like to do Sudoku while having IgG 4-weekly - it seems to make the time (around 2.5 hours) go quickly. My life has been so busy this year that I actually look forward to the opportunity to just sit quietly for a little while! Once the cannula goes in it's comfortable. Where I go the nurses rarely miss getting it in on the first try. I hope you find the same and that the transfusions really give you a boost.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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