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I have read back through your history to try and build an understanding of the statement of vidaza doesn't work. Since my transplant, I have had some cellularity issues - possibly related to infections - such as pneumonia and cellulitis, maybe some related to GVHD. In August of 2014 I had some MDS relapse and treated it with Vidaza - we are now approaching a year of clean biopsies, but lower cellularity in the marrow - marrow seems to keep bouncing back, and we have added IVIG to strengthen the white blood cell production and effectiveness.
Long story short - it sounds like you may be on a similar path - use vidaza to help with the underlying problem, use IVIG to boost the WBC - that's why it is a medical practice - try and balance out the different risks and advantages, observe, make adjustments. It has served me well thus far even though it means a lot of change and uncertainty at times.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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