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Hi Bailie - I haven't noticed any changes in my sense of smell but food does seem to taste slightly different - nothing dramatic. My appetite disappeared a few days before and after the "incident" - but now seems to have returned and I'm eating pretty heartily. I've been fortunate to have avoided mouth sores - at least so far- but if I haven't gotten them by now I should be OK - or so they say. I think I'm starting to lose my hair - I was hoping to dodge that one too.
You daughter sent me a lovely private message - seems like a great person - it was really nice to hear from her and she was very supportive and kind. Nice work!
Otherwise feeling good - waiting to engraft. Best
Paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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