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ferritin level
I was hospitalized due to fever since Sept. 19. Still in hospital today (Oct. 7).
Was given IV desferal or 3 days.
They checked my ferritin level; one time is 12000, repeated twice with greater than 32000... my normal ferritin level is around 2500.
They then checked my liver function, etc.
Considering the abrupt drop in my blood counts, doctors thought I have MAS (macrophage activation syndrome)... which caused my fever, etc.
But MAS does not have a clear diagnosis criteria.
What can I do? Go ahead to receive the treatment for MAS with Cyclosporine? Anyone had experience with such a sharp change in ferritin level?
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41yo Female, AA with digestive problem in May 2005, hATG+Cyclosporine no response, 11/2005 SLE diagnosed, Cellcept+pred, digest resolved, but still tx, 5/2008,shingles and IV pred, stop cellcept, tx free until 5/2015, MDS EB1, Marrow blast 9%, Monosomy 7
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