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Yes (Zubrod score), I was in the high risk group of every other scoring available. It is why I was started on Vidaza immediately upon diagnosis and then lenalidomide (Revlimid) before stem cell transplant. The Zubrod scoring can be very misleading with MDS as you note. I have concluded (from personal accounts) that the later a person realizes that MDS/AML is a problem, the worse the outcome.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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