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Data,
The link that Neil provided is really pretty good. I have gone up and down this one a hundred times. it has a cool feature in that it breaks down by disease and by related vs unrelated donors. It also gives information on how the institution does compared to what is expected which is neat because it gives us a risk adjusted return so to speak on how the institution performed. Because there are so few transplants performed, I would normally combine all of the MDS categories, an age range above and below mine, and then also sometimes include AML and/or myelofibrosis results as the transplant processes tend to be very similar, and I was looking to get some semblance of statistical validity.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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