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Ray - Great to read about your whole journey to date in one post. Thanks. It's an interesting account, and I'm impressed that you have been so positive, tenacious and courageous all the way through. How are you actually feeling right now?
Carrieridge - I'm really sorry to read that your husband still has MDS. That must be very disappointing, especially with such a good match. I totally understand that at his relatively young age you wouldn't want to be giving up. Will this be his 3rd SCT coming up or did he have a BMT November 2014? How is he feeling about it all?
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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