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Hi Smarti54,
You may want to take advantage of this watch-and-wait time to get a second opinion at a center with expertise in Aplastic Anemia. Given your young age and the absence of increased blasts and chromosomal abnormalities at the time of your first BMB, you may have more of an evolving AA or perhaps MDS/AA overlap.
Research has shown that the 13q deletion tends to respond to some form of immune suppression therapy, should that be needed in the future.
Have you been tested for PNH?
Best of luck!
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58 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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