Data, it appears that you're well informed about everything which is good. There are a lot of tests before your admission date. I remember having to take two days off from work because I had so many tests just to make sure that I was able to handle the transplant ordeal. You're probably used to that already! The temporary port that you will get before your transplant does make everything a lot easier and I got used to having mine pretty quickly. My experience was not that bad, but I felt really run-down for a week or two afterwards. I had a reduced intensity regimen w/ both chemo and total body radiation. They will encourage you to move around and that does seem to help. In my instance, I was so anemic for so long that I felt a big difference soon afterwards. I was not getting any blood or treatments before my transplant. Please keep us all posted as to how you are doing and many of us here are also happy to answer any questions.
Good luck
Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
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