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Old Tue Feb 23, 2016, 08:19 PM
orioles70 orioles70 is offline
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Join Date: Feb 2016
Location: Reisterstown,MD
Posts: 6
Any experience with Dacogen?

Dad (78) was diagnosed with ITP a year ago. He wound up on NPlate which made him feel lousy on days after injections, then it stopped working. 2 weeks ago, new diagnosis, MDS. Doctor immediately stopped the NPlate which isn't recommended for MDS. Dad has had a couple of platelet infusions as that count got very low. But red cell count seems only a little low.
Last week blood work showed 40% blasts - and AML was mentioned. This thing is snowballing downhill quickly.
He's been referred to a cancer center where the doc is recommending a 5 day course of Dacogen.

Anyone know how rough the side effects are? He's actually feeling much better since stopping the NPlate. I'm hoping the Dacogen works to get rid of the blasts without ruining his quality of life. Doctor really didn't tell him much in terms of prognosis - just let's try this and see where it goes.
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