Hypoplastic MDS
My name is Bobbye and my sister has just been diagnosed with Hypoplastic MDS. Basically NO white blood cells or neutrophils. I would like to speak with anyone out there who [even tho rare] has the same problem. She keeps saying I don't understand [and she's right to a certain extent] so I am trying to find someone with the exact same problem who DOES understand.
Please forgive me for any errors, I only today found out about this forum and am not yet familiar with how this all works. Is it proper for me to give my e-mail on here, or how does that work.
I very much appreciate any help or suggestions, this has been and is, a very emotionally and physically draining experience on all family members.
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