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Old Fri May 25, 2007, 08:39 PM
Linda Linda is offline
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Join Date: Sep 2006
Location: Goldsboro, NC
Posts: 67
A week since the first cycle of Dacogen,

Bob finished the 5 day cycle on the 18th. He had a transfusion of platelets on the 19th. He has had a very rough week since. He is weaker, and in more pain, ( bone softening? mentioned in side effects.) He has had fevers and flewy feeling. I hope we will be past this soon. Did you have these types of side effects? How does it affect you? He is on a 4 week rest period untill the next cycle. He was on Neupogen this week. No recovery of WBC or neuts yet. neuts are .2, WBC 2.1. platelets 23000. Will get Neulasta tomorrow. Will see if this is any better than Neupogen for Bob.
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Linda, Wife of Bob, dx REAB-1 19 Jan. 06. Beginning numbers 19% blasts, Vidaza for 10 cycles then stopped responding, as of Apr 07 REAB-T Blasts at 20 (AML). 2 cycles of Dacogen May and June, 3rd in Sep. Counts bottomed out (WBC and Plts). BMB in Oct. showed blasts at 51%. NC

Last edited by Linda : Fri May 25, 2007 at 08:42 PM. Reason: forgot to mention meds.
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