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MDS and peripheral neuropathy
I've recently had a bout of left sided shingles - possibly caused by the stress of looking after three grandchildren 6, 8 and 9 for several weeks (ongoing) while their mother has been away sick. At the same time I had a very nasty chest and sinus virus. I had a couple of nights in hospital at one stage.
Since then I've noticed my left toes and thumb and another couple of fingers on my left hand are constantly tingly. I guess it's caused by nerve damage from the shingles, but I seem to recall forum members mentioning peripheral neuropathy also. My research indicates that it can be a side effect of MDS. My immune system has taken a real battering lately.
I'm interested to know if anyone has overcome this problem or if it's permanent once it emerges. Thanks for your input!
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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