Quote:
Originally Posted by Hopeful
I also have pancreas issues. Are you doing Pancreatic Enzyme Replacement Therapy?
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Hi Hopeful!
I like your prednisone theory. I think the marrow is generally a very sensitive organ -- particularly among those of use who have some level of marrow failure. I recall that I had to stop exjade at one point because it was messing with my marrow.
I only have about on-third of my pancreas left, but, so far, I have needed neither insulin or replacement enzymes. I hope that holds up. It looks like transplant alone will have me on plenty of drugs all by itself!
Thanks!
Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at
www.greghankins.com