Hi,
Happy to have found these forums, as I have been diagnosed with Severe Aplastic Anaemia as a complication of a Thymoma. I'd previously had PRCA for a few months, but it's only been a few weeks since my platelets/neutrophils starting dropping like a stone and I'm already averaging platelet scores of 3 and my neutrophils are down to 0.4 and dropping. With marrow cellularity of <10% the expectation is that my neutrophils will continue to drop and that I'll soon have a 'Very Severe' diagnoses.
Due to a whole bunch of complications, it looks likely that treatment options will be very limited, so the prognosis is not good.
I'd like very much to get a Medic Alert bracelet sorted but I'm not sure what text to put on it about my SAA. I'm thinking along the lines of "Aplastic Anaemia: low HB, low platelets and Immunosuppressed" - but I'm not sure whether there are standardised things that emergency services are likely to recognise?
Any advice would be gratefully received.
X