Hi Lindsay!
I'm sorry to hear about your trouble. I'm not sure I have an answer for you, but I didn't want your post to go unanswered.
I think clinical symptoms are more important than lab results. Is your son still on the low HGB - Iron supplement roller coaster? If so, that's clearly a cause for concern. If not, then I wouldn't necessarily fret about the lab results.
It does sound like your relationship with your doctors is not particularly productive. I wonder if you might find others who are better to work with? Is that an option? Are you in the US or elsewhere?
Take Care!
Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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