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Ray
i was diagnosed with adrenal insufficiency and had to begin taking testosterone and lower dose hydrocortisone. u your body produces about 10mg of cortisol per day. since you have been on higher dose prednisone your body is probably experiencing the insufficiency as it has not had to produce in a while. you can usually taper off eventually but it may take longer than you would like. my doctor moved me to hydrocortisone as it is a little less harmful than prednisone. you might look into that as an option and supplement your prednisone withdrawal to keep your energy level higher.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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