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Thank you for your response JordanN.
I appreciate you taking the time to share your experience with your dad. I hope this is not rude, but may I ask, is your dad still alive?
My dad lives in Missouri and so I don't have an option of being much of an advocate for him. I try to stay abreast of the research etc. but, sometimes it leaves me with more questions than answers.
From what I understand, as you stated, Decagon is only effective for a much smaller group than the Vidaza. I also read that once treatment is stopped it is not effective upon restart so, I guess there are no other options at this point. Dad will not get the results from his last BMB until 1/9/17 so I guess there is still hope that there will be some improvement. He has been losing a lot of weight due to lack of appetite, more than anything, but it causes concern. I guess I will play the waiting game for a few more days. Thanks again.
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