Quote:
Originally Posted by kirag1964
I had absolutely no idea how unusual my presentation was until he told me he had last seen this when he was a resident!
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When my wife was treated for aplastic anemia, she was the only AA patient in the major Southern California treatment center. After she was diagnosed with MDS, it was over a year before she met another MDS patient. It's no wonder you have to hunt to find specialists with experience treating these diseases.