Sarah,
NORD hasn't yet announced their 2018
PNH Patient Meeting schedule. Chances are one of them will be in your part of the country.
The Aplastic Anemia & MDS International Foundation (AAMDSIF) will have a free
Patient Conference in Indianapolis on Saturday, May 19, 2018. There are likely to be at least a few PNH patients in attendance. Registration isn't yet open.
Even if meetings sponsored by NORD, AAMDSIF, and the
Aplastic Anemia & Myelodysplasia Association of Canada aren't in the midwest, they are only a plane ride away.