Carol,
Your husband has been through so many treatments! It's a shame that he (and you) are still struggling with these diseases. Feel free to ask questions here, or let us know what's on your mind.
I strongly recommend that you attend the
Patient Conference in Indianapolis two weeks from now (Saturday May 19, 2018). The chance to listen to experts and ask questions is a great opportunity to go beyond what you already know. You're lucky that it's right in your neighborhood and coming up so soon. It's also a chance to meet other patients in person.