Quote:
Originally Posted by Pearl
I read all the posts on in this forum with great care. I always have difficulty making sense of your posts, which seem disjointed, and now this. It would help me at least to have a comprehensive picture of the blood and bone marrow test results. That would be the way to get the most help.
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I'm not entirely sure how you would want me to be more clear. My husband shows a mutation on his gene panel called CEBPA. I've looked back to the posts of mine that you've commented on, and honestly I have no idea what you mean by disjointed.
Where we live it takes a while to get into see a doctor and specialist appointments are 6 months apart. I use this forum to get advice from people who possibly have similar experiences. If you don't have a similar experience, I wouldn't expect you to research it for me, just move along and ignore my post.
I read posts here that are so long and rambling I have a hard time understanding what they are asking. I don't make a big deal about it, I just move on. I hope you can do the same.
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Husband (61) dx RAEB1 Apr 2015 after long term bad CBCs (first discovered Apr 2008 after an unknown infection had him hospitalized), currently on watch & wait with monthly bloodwork. Myeloid Gene Panel testing done Aug 2017, showed nothing worrisome. CEBPA mutation