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Thank you for reply, Marlene. So nice of you.
My mother had a very stressful day yesterday, and her platelets are are 16 today after just getting platelets two days ago. That's never happened before. I read that severe stress can cause lower platelet levels. Hemoglobin levels are much more important than platelet levels, but it was another disappointment. Ever since the doctor said that the treatment may not be working, she has been an emotional wreck. I am sure this is affecting her levels somehow, too.
We're at 13.5 week after ATG and things stand: hemoglobin: 7.9 ; platelets: 16 and neutrophils: 600
Neutrophils have been between 600-800 for 5 weeks.
She's going to try to do some very low-intensity exercises. They say it can increase hemoglobin a bit.
Best wishes to you and your husband.
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